Parents often talk about fighting for the interests of their child, but few will have had to go into battle to the extent Matt and Alison Hughes have for their four-year-old son, Charlie.
As well as facing endless red tape, they’ve spent eye-watering sums of money and were ready to go to the High Court to access medicines that appear to transform Charlie’s health.
Charlie has Lennox-Gastaut syndrome, a rare form of epilepsy that can cause up to 120 seizures a day, causing the little boy to clench his fists and lean forward ‘like someone has hit him in the stomach’.
– Read the entire article at The Daily Mail.
