The first thing that struck me about Mike Dawe when I met him about a year and a half ago was how tall and slim he is, how long and slender his fingers are, and how his big shoes suggest equally long and slender toes.
To anybody familiar with his chronic condition, all that comes as no surprise.
Marfan syndrome is a genetic disorder of the connective tissue which afflicts those who have it with debilitating symptoms too numerous to list here. Long limbs are a prominent part of the syndrome’s profile. So are pain and insomnia.
It would be totally understandable if Dawe went even slightly out of his way to dramatize his situation. He doesn’t, and that’s the other striking thing about him, his engaging thoughtfulness.
So when he says, “We’re basically being thrown to the wind,” it’s worth listening to what he has to say.
– Read the entire article at CBC News.