When 18-month-old Amelia Weaver caught the flu, her mother took her to see the doctor. Amelia had her first seizure in the pediatrician’s office.
“Watching my baby have a seizure was the scariest experience of my life,” mother Angie recalls. At first, it seemed a one-time episode. A year passed. Three-year-old Amelia was walking, talking, learning her letters, and counting up to 20.
ate one morning, the Weavers woke up to silence from their daughter’s room. It was strange. Amelia would usually be their alarm clock. They found her in her crib, in the throes of another seizure. Four more would follow in quick succession as the Weavers rushed Amelia to the hospital.
Over the next few months, Amelia lost the ability to walk, talk, and eat on her own. She started having 30 to 80 drop seizures a day. Eventually, she was diagnosed with Dravet Syndrome, a severe form of epilepsy. The Weavers had an explanation for Amelia’s condition, but no cure. They tried 23 different anti-epileptic meds, and none of them worked.
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